Browsing by Subject "Diabetes in adolescence"
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Item Family structure, family social support behaviors, adherence to medical regimen, and metabolic control in juvenile diabetics(Texas Tech University, 1995-08) Robertson, John ScottOne hundred and sixty-eight diabetic children and their parents were surveyed to explore correlations between several variables relevant to the management of insulin-dependent diabetes mellitus (IDDM). General family environment (measured by a 50 item version of the Family Adaptability and Cohesion Scale, FACES-R), disease specific social support behaviors (measured by a 60-item Social Support Behavior Questionnaire, SSBQ), regimen adherence (measured by three 1-day logs of 13 specific variables), and metabolic control (measured by HbAl) were assessed. No significant correlations (p<.01) was found between social support behaviors and adherence to the IDDM regimen. Agreement among family members as to either the desirability or frequency of social support behaviors was non-significantly (p<.01) correlated with children's adherence to the IDDM. Neither parents' nor children’s general family environment scores were significantly correlated (p<.01) with either regimen adherence or metabolic control in children. Adherence variables, even when factorially reduced, were not significantly (p<.01) correlated with metabolic control. Post hoc analyses were performed to explore possible bases for non-significant findings, with results suggesting that weak statistical reliability, factorial instability, and possible measurement and reporting errors may have contributed to findings. The implications of the psychometric and sampling weakness were discussed with recommendations for future research.Item The school-based lived experiences of being an adolescent with type 1 diabetes mellitus(2011-05) Wang, Yueh-Ling; Horner, Sharon D.; Brown, Sharon A., 1943-School plays critical roles in facilitating and inhibiting the safety, development, and well-being of adolescents with T1DM. However, their school-based lived experiences have been under-investigated. This study aimed to explore those experiences for adolescents with T1DM in Taiwan. In conducting the study, Heidegger’s hermeneutic phenomenological approach was used. Fourteen Taiwanese adolescents with T1DM were enrolled between June 2009 and July 2010 through purposive snowball sampling. Data were collected using audio-recorded, semi-structured interviews and analyzed using the hermeneutic circle and West’s (1998) structural analysis steps, supported by qualitative analysis software NVivo 9.0. Reflective journaling, peer debriefing, memo writing, and member checking were performed to enhance the trustworthiness of the findings. Six interrelated themes were identified in the adolescents’ school-based lived experiences. They are (a) the same and different, (b) covert and overt, (c) hyper- and hypoglycemia, (d) independent and dependent, (e) derailing and being on track, and (f) dark clouds and silver lining. In the stressful context of school, the adolescents’ diabetes self-management is challenged. Multiple factors, including unaccepted disease identity; social anxiety and pressure; intrusive, ignorant school personnel and classmates; and transition to independent self-management threaten the adolescents’ health and well-being at school. To optimize diabetes self-management effectiveness, interventions should include the adolescents and their parents, classmates, and school personnel to ease burdens that the adolescents bear. Future interventions should also facilitate the adolescents’ autonomy, self-efficacy, diabetes knowledge and self-management, and capacity to alleviate social pressure.